Will the DFR share my data with researchers and doctors?

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Will the DFR share my data with researchers and doctors?

The DFR may share your data with researchers, doctors, or scientific laboratories who are researching DDX3X Syndrome. Interested parties are required to submit a written research proposal to The DDX3X Foundation. Before providing data to researchers, a Research Committee reviews the proposal to determine whether sharing data is in the best interest of the affected community.