The DFR Can Help Advance Your Research

The DXX3X Foundation Registry (DFR) aggregates data from patient-reported outcomes, medical records, and biospecimens to form a more complete picture of individuals with DDX3X Syndrome. We can assist your research efforts in a number of ways:

• Provide access to previously collected DFR data
• Help collect new data from DFR participants
• Help you find participants for your own study
• Release new surveys to help you better understand DDX3X Syndrome

We are committed to sharing DFR data, in order to foster engagement with this rare disease. Please email info@ddx3x.org to learn more about accessing data from the DFR. We look forward to working with you to help you study DDX3X Syndrome.