Who can register in the DFR?
The following individuals are eligible to register in the DFR:
- An individual with DDX3X Syndrome
- A parent or legal guardian of an individual with DDX3X Syndrome, who has not attained the legal age of consent (under 18 years of age in most instances).
- A parent or legally authorized representative of an adult-aged affected individual who is not able to understand their participation or legally provide consent.
- A parent or legal guardian of an affected individual who is deceased.