How much data do I need to share, and how much is enough?

Title: 
How much data do I need to share, and how much is enough?

The more information you can contribute about your experience with DDX3X Syndrome, the better!

The DFR will continue to evolve as research advances. Additional surveys may be added and existing ones may change based on future need. Some will be shorter because only a few answers are needed; others will be more comprehensive, as needed, for research.