Title:
Why should I submit medical records to the DFR?
- Your medical records include a wealth of data that is relevant to researchers, scientists, and pharmaceutical companies interested in DDX3X Syndrome. Medical records submitted to the DFR can help to better understand the complete natural history of DDX3X Syndrome and enable researchers to pursue novel avenues toward a cure.
- You can also use the DFR to securely store records, retrievable by you at any time from anywhere with an Internet connect.
- Uploading or linking your medical records is entirely voluntary and not required to register in the DFR.